Tuesday, October 12, 2010
Wednesday, September 8, 2010
Emory Miracle Marathon
We’ve partnered with a new organization, and HopeWatch is going to college. We’ve teamed up with Emory Miracle Marathon, and we couldn’t be more excited.
Emory Miracle Marathon was started in 2002. On March 22, 2008 participants and organizations came together for entertainment, games, and dancing. All of this was going on while Emory Miracle Marathon was raising money to make miracles happen at Children’s Healthcare of Atlanta.
Of course every Dance Marathon has to have a morale dance. This is where participants learn a choreographed dance to a mix of popular songs and then showcase it at the end of the fundraiser. Since they began in 2002 Emory Miracle Marathon has raised close to $150,000 for Children’s Healthcare of Atlanta.
We were inspired by the idea of college kids taking time out of their lives to help a great organization like Children’s. I had the pleasure of meeting Lauren and Terilyn at Children’s Miracle Network. They had seen our watches from a few events that we’d done with Children’s and thought it would be a great idea to have us team up with the college non-profits. After Lauren and Terilyn pitched the idea of teaming up with us, Lydia, the Emory Miracle Marathon President, got in touch with me.
In talking to her I got to better understand their organization so I’ll pass that along. Emory Miracle Marathon is a student run, non-profit organization that benefits Children’s Healthcare of Atlanta, a hospital of the Children’s Miracle Network. They unite the University campus with the Atlanta community through special events and member fundraising efforts to raise money for the kids. Each spring the grand total is revealed at the annual twelve-hour Dance Marathon event. Seriously, 12 hour dance marathon.
You can find them on Twitter (@EmoryMM) and Facebook (search "Emory's Dance Marathon") so be sure to visit their sites and support their cause, it’s all being done for the kids.
Friday, July 23, 2010
We've Partnered with CURE Childhood Cancer
CURE was founded in 1975 by Dr. Abdel Ragab, head of the newly established Division of Pediatric Hematology/Oncology at Emory University. Dr. Ragab was the first pediatric oncologist at Emory. Because of the urgent need to fund a pediatric oncology research program at Emory and to provide support for families afflicted by childhood cancer, Dr. Ragab organized a group of parents who formed CURE Childhood Cancer.
CURE’s first mission was to help raise funds for a special microscope and other equipment to assist in diagnosing different types of childhood leukemia, using newly developed techniques. In 1978, CURE contributed $20,000 dollars to purchase the microscope and related research equipment. Additionally, CURE was soon able to provide partial support for the training of Pediatric Hematology/Oncology fellows during their research rotations.
From 1975 to 1981, the childhood cancer research lab was located at Grady Hospital. Since most of Dr. Ragab’s patients were being treated at Emory Clinic, CURE provided a significant donation in 1981 to establish a research lab on the Emory campus. This was designed as a temporary facility while plans were made to build a permanent lab on the campus. Finally, in 1987, a new outpatient clinic for childhood cancer was opened on the campus. Over several years, CURE raised more than one-million dollars to build and equip a laboratory on the second floor of the pediatric oncology clinic. The Childhood Cancer Research lab was dedicated in 1989. The lab represented a huge step forward in providing an up-to-date facility with almost 3,500 sq. feet of space devoted to research in childhood cancer, the first of its kind at Emory.
Under Dr. Ragab’s leadership and with CURE’s backing, the childhood cancer research program at Emory continued to grow and soon became one of the largest pediatric oncology programs in the country in terms of patients diagnosed and treated each year. Besides supporting research, CURE soon made another great contribution to the treatment of childhood cancer by promoting passage of an act in the Georgia legislature titled Calloway’s Law. The act was named in memory of Calloway Thrash, an early patient of Dr Ragab and the son of one of the first presidents of CURE. While being treated for leukemia, Calloway had been unable to obtain insurance coverage for an experimental drug. After Calloway’s death from leukemia, his father and CURE successfully lobbied the Georgia legislature in support of a bill that would mandate Georgia insurers to support experimental therapies for childhood cancer. The passage of this act in the late 1990s was a great advance in support of pediatric cancer clinical trials.
As an outgrowth of basic and clinical research funded by CURE, a number of new therapies were tested at Emory beginning in the 1980s, including the first trial of retinoic acid in pediatric acute myeloid leukemia and the first trial of interleukin-2 for stimulating the immune system in childhood cancer patients. These trials were supported by research performed in the Childhood Cancer Research Laboratory at Emory. Later, in collaboration with the National Cancer Institute, this research included the first laboratory testing of a new drug (BL22) targeted at pediatric acute lymphoblastic leukemia (ALL), a major type of childhood cancer. Using data from this research, the NCI obtained approval for a clinical trial testing BL22 in ALL. Results from this trial have been promising and have led to a trial for a second-generation form of BL22 (called HA22), which is now ongoing with even more promising results. Funding from CURE was critical in supporting the Emory-NCI research collaboration which led to these trials.
Since that time, CURE has raised millions of dollars to fund cutting edge research at the Aflac Cancer Center and Blood Disorders Service at Children's Healthcare of Atlanta and Emory University School of Medicine. Through innovative programming, CURE also provides crisis-oriented support for stricken families aimed at addressing their most critical and urgent needs.
We've Partnered with CURE Childhood Cancer
CURE was founded in 1975 by Dr. Abdel Ragab, head of the newly established Division of Pediatric Hematology/Oncology at Emory University. Dr. Ragab was the first pediatric oncologist at Emory. Because of the urgent need to fund a pediatric oncology research program at Emory and to provide support for families afflicted by childhood cancer, Dr. Ragab organized a group of parents who formed CURE Childhood Cancer.
CURE’s first mission was to help raise funds for a special microscope and other equipment to assist in diagnosing different types of childhood leukemia, using newly developed techniques. In 1978, CURE contributed $20,000 dollars to purchase the microscope and related research equipment. Additionally, CURE was soon able to provide partial support for the training of Pediatric Hematology/Oncology fellows during their research rotations.
From 1975 to 1981, the childhood cancer research lab was located at Grady Hospital. Since most of Dr. Ragab’s patients were being treated at Emory Clinic, CURE provided a significant donation in 1981 to establish a research lab on the Emory campus. This was designed as a temporary facility while plans were made to build a permanent lab on the campus. Finally, in 1987, a new outpatient clinic for childhood cancer was opened on the campus. Over several years, CURE raised more than one-million dollars to build and equip a laboratory on the second floor of the pediatric oncology clinic. The Childhood Cancer Research lab was dedicated in 1989. The lab represented a huge step forward in providing an up-to-date facility with almost 3,500 sq. feet of space devoted to research in childhood cancer, the first of its kind at Emory.
Under Dr. Ragab’s leadership and with CURE’s backing, the childhood cancer research program at Emory continued to grow and soon became one of the largest pediatric oncology programs in the country in terms of patients diagnosed and treated each year. Besides supporting research, CURE soon made another great contribution to the treatment of childhood cancer by promoting passage of an act in the Georgia legislature titled Calloway’s Law. The act was named in memory of Calloway Thrash, an early patient of Dr Ragab and the son of one of the first presidents of CURE. While being treated for leukemia, Calloway had been unable to obtain insurance coverage for an experimental drug. After Calloway’s death from leukemia, his father and CURE successfully lobbied the Georgia legislature in support of a bill that would mandate Georgia insurers to support experimental therapies for childhood cancer. The passage of this act in the late 1990s was a great advance in support of pediatric cancer clinical trials.
As an outgrowth of basic and clinical research funded by CURE, a number of new therapies were tested at Emory beginning in the 1980s, including the first trial of retinoic acid in pediatric acute myeloid leukemia and the first trial of interleukin-2 for stimulating the immune system in childhood cancer patients. These trials were supported by research performed in the Childhood Cancer Research Laboratory at Emory. Later, in collaboration with the National Cancer Institute, this research included the first laboratory testing of a new drug (BL22) targeted at pediatric acute lymphoblastic leukemia (ALL), a major type of childhood cancer. Using data from this research, the NCI obtained approval for a clinical trial testing BL22 in ALL. Results from this trial have been promising and have led to a trial for a second-generation form of BL22 (called HA22), which is now ongoing with even more promising results. Funding from CURE was critical in supporting the Emory-NCI research collaboration which led to these trials.
Since that time, CURE has raised millions of dollars to fund cutting edge research at the Aflac Cancer Center and Blood Disorders Service at Children's Healthcare of Atlanta and Emory University School of Medicine. Through innovative programming, CURE also provides crisis-oriented support for stricken families aimed at addressing their most critical and urgent needs.
Tuesday, May 11, 2010
Children's Healthcare of Atlanta
That is why Children's Healthcare of Atlanta is so important. HopeWatch has selected Children's Healthcare of Atlanta as one of our special charities. This means that even when we donate to other causes, our 3 charities still get help. At Children's their main focus is specialized care for children. But how do they do that?
First off, the doctors that work there receive additional training. And like most medical training this amounts to extra years of training. This training is honed by the fact that the doctors only treat children; this way they can focus on the kid's needs and develop their skills in pediatric medicine. Treating only children certainly constitutes specialized care, but they don't just stop with the doctors.
Children's also trains their staff to work specifically with children. The staff learns how to listen to children as well as look for nonverbal clues. It's easy to forget why this is so important, but remember, some of the patients at Children's are newborns and babies. They also train the staff in how to calm children down. When kids are scared from all the equipment and strangers on top of being sick, this is invaluable. The staff also has to be gentle and able to help the patient understand what is happening and remove as much fear as possible.
Even the buildings are designed with kids in mind. They have playrooms and fun colors. The fun colors even show up on the staffs scrubs along with some characters. Some nurses even end up with nicknames based on these characters, like 'mama duck'. It's inspiring to visit Children's website every once in a while to see their videos and read articles. Seeing kids upbeat and cheerful during their treatment or shortly after is amazing. Most recall the hospital experience as a good one. Now truth be told, I've seen my fair share of hospitals. I for one am a huge fan of the staff wearing bright colors and characters. No one wants to be in a hospital, the staff dressing like this helps distract you from what has brought you to the hospital in the first place. I think that's a great thing to give a child.
They also don't treat children like many hospitals will treat their patients, scooting them out the door as soon as possible. No at Children's they know how important it is to receive good care while being surrounded by family. This is why they focus on Family Care. Family has to be involved in the recovery process so they have 24 hour visitation! Yes, the whole hospital is open to visitation from family for 24 hours, and this includes the ICU. I can't imagine how reassuring t is for a child to know that their parents can visit anytime and even spend the night.
The quality of care at Children's is second to none. They have been working with kids for years and they definitely have their eye on the future. But it is a future that is by no means guaranteed. Children's Healthcare of Atlanta is a not-for-profit organization. Yes, while healthcare bills are skyrocketing and insurance premiums become too much for many families, Children's does not operate for a profit. They rely on financial or volunteer support. The donations that we make directly impact Children's patients. Look into a child's eyes when he or she is sick and you'll soon know why we are dedicated to helping children. Walk the halls of Children's Healthcare of Atlanta or watch their videos and you'll know why we chose Children's. Every HopeWatch sold benefits Children's Healthcare of Atlanta. But if you don't want a watch please donate time or money to help a great organization. Their slogan is truth in advertising, "children need Children's, and Children's needs you."
Wednesday, April 28, 2010
Live and changing
We've teamed up with Run Level Media, a small local firm that does impressive work. They are great guys, quick to call you back and eager to help you get exactly what you want. They are also great to work with if you're less than tech-savvy. Quick to explain what can be done and show you some options or offer suggestions,Run Level Media is a great firm for web design. It's been great to get them on board and we are really excited about our new website.
Unfortunately that means that the current site is still limited. In reality it has a lot of good information about us and the charities we support. The three we have chosen; water.org, Children's Healthcare of Atlanta, and North Fulton Community Charities, are great causes and great organizations. We want to get them as much help as we can and as quickly as possible and we are taking orders. So know that when you email us it is being read by a live person and you'll get a response from one of us as well. Sure it's a little old-fashioned but we believe in what we are doing and we're dedicated to giving to our charities.
Tuesday, April 20, 2010
Upcoming Event!
This Thursday April 22, 2010, HopeWatch is teaming up with the UGA Georgettes for a joint fundraiser. We will be at Loco’s in Athens, Georgia from 5:00 PM to 9:00 PM. This is an opportunity to come enjoy good food and drinks, watch the Georgettes perform and donate money to a great cause. On Thursday all donations will go to benefit 4 organizations. As always, HopeWatch will be giving most of our proceeds to our three chosen charities. Please visit our website at www.hopewatch.org and see the three charities we have chosen. Also, check out our News and Events page frequently as we update it with new events and charities. We hope to see you Thursday, thank you for the support.
